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World ALS Day: Early Diagnosis Can Transform Lives for Patients

22/06/2026 16:40 - Salud

Médico neurologo mostrando imágenes de cerebro en consulta médica moderna con luz esperanzadora, ambiente profesional

What is ALS and Why Early Detection Matters

Amyotrophic Lateral Sclerosis (ALS), known in Argentina as "Esclerosis Lateral Amiotrófica," is a progressive neurodegenerative disease affecting motor neurons that control voluntary movements. While there is currently no cure, early detection allows for better treatment planning, interventions, and support strategies from the initial stages.

Key ALS Statistics in Argentina

Indicator Data
Annual new cases 900 to 1,000
Total diagnosed patients 3,000 to 3,300
Prevalence rate 1-3 per 100,000 inhabitants
Most common age range Over 40 years (peak 50-70)
Familial form 10% of cases
Sporadic form 90% of cases

Early Warning Signs to Watch For

Specialists warn that initial symptoms tend to be subtle and vary between patients:

  • Difficulty holding everyday objects (pen, cup)
  • Progressive loss of strength
  • Changes in voice or speech
  • Problems in legs, feet, or swallowing muscles
  • Difficulty performing routine movements

Understanding the Name

Amyotrophic: From Greek "without muscle nutrition," referring to muscle atrophy.

Lateral: Areas of the spinal cord where nerve cells controlling movement are located.

Sclerosis: Hardening or scarring of nerve pathways as they degenerate.

Functions That Remain Intact

One of the least known aspects of ALS is that, despite progressive physical disability, several functions remain preserved:

  • Cognitive functions and mental clarity
  • Sight, touch, hearing, taste, and smell
  • Eye movements
  • Thinking capacity
  • Understanding of surroundings
  • Bladder function

Available Treatments in Argentina

Currently approved treatments can improve quality of life:

Riluzole

Medication that slows disease progression

Edaravone

Drug that protects neurons from oxidative damage

Tofersen

FDA-approved for patients with SOD1 variant

Expert Insight

"Initial symptoms are often subtle and vary greatly between patients. That is why it is important to consult promptly when experiencing progressive loss of strength, difficulty performing routine movements, or changes in speech or swallowing." — Dr. Alejandro Köhler, Coordinator of the ALS Clinic at Fleni (Foundation for Neurological Research).

Source: Elonce.com | World ALS Day: June 21 | Fleni is a renowned neurological research center in Buenos Aires, Argentina.

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